A PoTS Day - Photographic Memories

A PoTS Day

10/27/2018

I felt the symptoms sneaking in all week. Muscle pain, exhaustion, vein issues....I mostly ignored them and assumed they were because of some other cause. I went to the chiropractor, took Naproxen and moved on. But yesterday was distinct. I felt my feet go numb when I was driving. That might not seem surprising for people without PoTS with two bursts of 2.5 hours in the car without stopping. But it's not the kind that you need to get out of the car and walk around a bit. It works up into my whole body. 

I came home and went to bed quickly, overwhelmed with fatigue. This morning, I opened my eyes and just knew my PoTS was hitting me hard today. My fingers feel like hot dogs taped onto my hands. My feet feel like they're encased in small blocks of cement. Everything feels swollen and stiff and unfamiliar. I've been doing so well and dreaded this feeling. We leave for a vacation soon and I wonder if I'll have time to recover before we leave and have lots of long days walking. I just ached all over as if I have the flu but I do not. I lie awake for about an hour before I finally could awkwardly get out of bed. Even my kidneys feel sluggish. I added in a few Google searches for "symptoms related to Postural Orthostatic Tachycardia Syndrome" to be sure I didn't have something else. Because the toughest thing about this disease is that when you get a diagnosis, your doctor isn't always confident that he or she is correct and when you ask about identifying the cause to try and make it better, they nearly always tell you that its impossible. So you leave the appointment alone and trying to navigate everything solo.

So this week, I'll focus on pumping water and getting rest, but I have so much to do this week. I'm feeling overwhelmed just thinking about it. I start to wonder if there is another job that may work better for me. I wonder if I just try a particular food or start a new exercise program if I'll suddenly solve it. But I can't tackle solving a disease this week. I just need to feel good fast for our upcoming trip. 

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